I've been asked, a lot recently, what we need help with in light of Tyler's new diagnosis and the increased demands on our finances, time and energy. So, to make it a little easier for me to remember what it is we do need help with, I've started this blog. This is a place that anyone is welcome to visit and find out ways that they can help Tyler and our family as we transition into living with his disease. I will make each need a separate blog post explaining the how, what, when and where we need help and as people fulfill needs I will update those posts.
I want everyone to know how much it means to us to have the support, love and prayers of those around us that know Tyler and even those that dont! It makes every day a little brighter, a little easier to bear the load, knowing that so many people are out there praying, sending good thoughts and a little bit of love our way!
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I actually like this blog idea and made an extentsion of my own blog to one just about Kody and linked it to his caringbridge. Hope that people really catch on and if nothing else walk away with better understandings of FRDA.
ReplyDeleteThanks Lisa :) I'm still working on it little by little but I'm glad you liked the idea. I think you and I are probably a lot alike! I've loved following you and Kody on your blog and caringbridge so I'm glad to see that my idea inspired someone that inspired me! Hugs!
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